What would you do if you woke up tomorrow and couldn’t move? What would you do if life was no longer yours? How would you respond to people if you were unable to breathe for yourself, unable to talk and although you were being told to “blink one for yes and two for no” , you had no spatial awareness or feeling? By Naomi Lambert , Creator and Founder at The Cool To Be Kind Project I won’t sugar coat it. It’s a living hell. I know, because I have been there. In 2008, I contracted an autoimmune disorder known as Guillain-Barre Syndrome (GBS) although my diagnosis was changed to CIDP (Chronic Inflammatory Demyelinating Polyradiculoneuropathy) after my symptoms didn’t seem to get better. “They aren’t getting worse” I remember the doctor saying which, in hindsight, is hilarious considering I was already in ICU, on life support, tubes in all places and unable to move. In Guillain-Barré syndrome, the body’s immune system attacks part of the peripheral nervous system.
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